Jonah Pournazarian Glycogen Storage Disease 1B Research Fund

Your gift can help world-class researchers working towards a cure for glycogen storage disease (GSD). Jonah Pournazarian is one child with GSD whose doctor, Dr. David Weinstein, director of the GSD Program at the UConn School of Medicine, is leading a team doing breakthrough research on this rare childhood disease that, until 1971, was fatal. Today, the cure is on the horizon: the missing gene and the carrier virus that can deliver the gene effectively have both been identified.

Learn more about the UConn Health GSD Program.

If you'd like to receive a copy of The Chocolate Bar Book—the story of a six-year-old boy trying to help his best friend with GSD find a cure—take a look at the project page below.

  • Donation

Supported by 25 Donations: