Jonah Pournazarian Glycogen Storage Disease 1B Research Fund

Your gift can help world-class researchers working towards a cure for glycogen storage disease (GSD). Jonah Pournazarian is one child with GSD whose doctor, Dr. David Weinstein, director of the GSD Program at the UConn School of Medicine, is leading a team doing breakthrough research on this rare childhood disease that, until 1971, was fatal. Today, the cure is on the horizon: the missing gene and the carrier virus that can deliver the gene effectively have both been identified.

Learn more about the UConn Health GSD Program.

If you'd like to receive a copy of The Chocolate Bar Book—the story of a six-year-old boy trying to help his best friend with GSD find a cure—please make a gift through this page.

Additional Projects

  • Donation

Supported by 29 Donations:

  • steven f.
    I Gave $1,000
    In honor of Jonah and to a cure!
  • Vickie M.
    I Gave $25
  • Kimberly V.
    I Gave $25
    After reading about Jonah and Dylan, my 4th graders were touched by the love and compassion of friendship. My class asked that a donation be sent.
  • Steven  A.
    I Gave $300
  • Charity W.
    I Gave $25
  • Sandy S.
    I Gave $500
  • Jacob K.
    G-d Bless you all !!!
  • Yael  M.
    I Gave $1,000
    For Jonah Pournazarian.
  • Silhouette
    Anonymous
  • Paula and Jack F.
    Always with love and support!! Paula and Jack
  • lotfi m.
    I Gave $300
    Our best wishes for your speedy recovery, Love Mehdian fanily
  • Caroline  N.
    I Gave $360
    With all our love and Support ! Nourafshan Family
  • pat j.
    I Gave $400
  • Pedram B.
    I Gave $200
  • Farid  N.
    I Gave $100
  • Silhouette
    Anonymous
  • SIAMAK O.
  • Hava R.
    I Gave $250
    With all our love and support - The Rahimian Family
  • Silhouette
    Anonymous
    I Gave $260
    love Jonah and wish for the quick cure.
  • Behzad B.
  • Shirin and Ramin  K.
    I Gave $300
    This is for Jonah pournazarian
  • Angela C.
    I Gave $100
    So proud of Jonah, Lora and Robin Pournazarian.
  • Nasser H.
    I Gave $100
  • JACOB K.
    I Gave $500
    Wishing for speedy cure.
  • Shahab B.
    I Gave $500
  • Silhouette
    Anonymous
  • Sol C.
    I Gave $200
  • Silhouette
    Anonymous
    Terry Hongell
  • Jennifer G.